Sunday, October 10, 2021

A Long Covid Patient Contributes Her Words Here

I am very happy to feature the words of Carole Terrizzi below.

While she and I are "co-workers" (we are both Professors in Residence) for a large, public university, we did not know each other very well until this experience.

Now for better or for worse, that has changed and we text each other very frequently.  Every day.  Long Covid is isolating.

     "Covid has changed my life. It has taken away my essence and my peace. I was fully vaccinated in April 2021 but contracted the virus in late August. My symptoms were mostly that of a very bad sinus headache and nausea. I never thought I had Covid. From my symptoms I really thought I had a brain tumor. I took myself to the emergency room and they said I had Covid. I got monoclonal antibodies."

     "The headache and nausea were incredible for about a week and then subsided. About a week later I got sick again. Nausea every day.. brain fog.. tingling in my legs. Aches and pains. So hard to sleep."

     "Anyway now it’s October and I’m still sick I’ve been to the emergency room five times. Oh I forgot the high blood pressure. I have seen my GP at least 5 times, and a neurologist and soon a gastro doctor." 

     "I am convinced I have something deadly. I am ridden with anxiety. For now, that’s my story. I’m sad… depressed and I feel like I will never be well again."


Would you like to contribute your words, experience, art work, poems, vents, rants about Long Covid here? Please email your contribution to me at triadasamaras@gmail.com If you wish to remain anonymous I will not post your name. Triada













Saturday, October 9, 2021

If you have Long Covid you must start Here

 If you have Long Covid you must start here:


Survivor Corp

https://www.survivorcorps.com/

https://www.survivorcorps.com/advocacy

https://www.facebook.com/groups/COVID19survivorcorps/


Post Covid Care Centers

https://www.survivorcorps.com/pccc


Time

Can Breakthrough Infections Lead to Long COVID? For an Unlucky Few, Yes

WHO/World Health Organization

https://time.com/6102534/breakthrough-infections-long-covid/?jwsource=cl






Wearing my New Work Clothes to Bed (Digital Media 3)

 



One of the things I have done while having Long Covid is shop for recycled clothing at this awesome site. I have never had so much time to scroll through clothes!

I call these items: "New work clothes."  Only I am not working.  So I wear them to bed.

Here I am in my new "work" dress that fits like a glove.  Thank you Thred Up!

(And the returns are so easy too).





Yes I was vaccinated....

Was I vaccinated before I got Covid in July 2021?

Yes I got the Moderna vaccine twice in January and February 2021.

Was I treated with monoclonal antibodies in the first 5 days after getting Acute Covid in July 2021?

Yes I was given monoclonal antibodies on day 4.

Was I wearing a mask when I got Covid on vacation in a small, rural and very picturesque town in New England?

Hell yeah.  But it was a very loosely-fitting cotton one.  But I wore it every time I was indoors dammit.

The rest is history. (HERstory)














Long Covid is Long (Digital Media 2)

One of the silver linings in Long Covid is this:

I am playing around with digital media from my bed.

Why not?  Even if my hair is falling out a bit on the keyboard and I have the usual splitting headache, what the heck.





I feel for this man.  Deeply. I read such stories all the time.


I do feel I was lucky / blessed to get Long Covid AFTER being vaccinated. 
My time table with Acute Covid was VERY LUCKY.
And I feel the monoclonal antibodies I got when I had acute Covid helped a 
great deal.
These measures are making my Long Covid undoubtedly milder!
And will help me in the long haul.
No ifs ands or buts.









Friday, October 8, 2021

Would you like to take a survey on Long Covid?

One of the things I have gotten rather obsessed about is surveys and research studies on Long Covid.  

There are many studies about Long Coivd taking place and many looking for volunteers.  Who knew?

Welcome to my new world.

An Initiative Funded by the National Institutes of Health

https://nyumc.qualtrics.com/jfe/form/SV_bftG8HFabFKW5KK?mc_cid=9103f2226d&mc_eid=9189bce825



This is my treatment Center in NYC.  I feel so very blessed to be here:  

LINKS:

https://reports.mountsinai.org/article/pulm2021-08-center-for-post-covid-care

https://www.mountsinai.org/about/covid19/center-post-covid-care?_ga=2.129355599.210466550.1633726943-2025958528.1631413144








Long Covid is Long Long Covid is Long (Digital Media 1)


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Delayed Recovery After Exercise Found in ME/CFS and Fibromyalgia

  Delayed Recovery After Exercise Found in ME/CFS and Fibromyalgia https://www.healthrising.org/blog/2022/02/16/delayed-recovery-exercise-fi...