Long Covid Information / Resources etc.

I am posting some resources I have found here,  This is a 'random' list.  Whatever I have seen and clipped from the "newspaper"/ Internet these days makes it here. Also I keep adding things as I find them.

I do not mean for this to be an exhaustive list by any means.

Post Acute Covid-19 Program LINK

In the wake of COVID-19, the medical community has begun to acknowledge a subgroup of patients presenting with "long hauler" or persistent symptoms after an initial COVID-19 infection. The team at Mount Sinai Health System first identified this novel symptom presentation, and named it Post Acute COVID-19 Syndrome or "PACS". To address the needs of individuals experiencing PACS, the Department of Rehabilitation and Human Performance, along with Mount Sinai’s Center for Post-COVID Care, has developed a novel rehabilitation program. We are one of very few Centers in the country providing these services to patients of all ages. To learn more about this program, please email us at PRcovid@mountsinai.org.

Media Articles

For more information on post-COVID conditions, refer to the personal stories of COVID-19 survivors. 

• The Atlantic
  Long-Haulers are Redefining COVID-19
• Forbes
  Many COVID-19 Survivors Suffer Months Of Post-Viral Symptoms: Tough New Realities — And A Personal Journey
• The Wall Street Journal
  Three Months In, These Patients Are Still Ravaged by Covid’s Fallout
• The New York Times
  Here’s What Recovery From COVID-19  Looks Like for Many Survivors (free subscription needed
• Slate

Can You Get Long COVID if You’re Vaccinated?

USA Today The Backstory: Long COVID causes fatigue, pain. Here's what long-haulers want you to know:https://www.usatoday.com/story/opinion/2021/09/17/long-covid-symptoms-last-months-longer-what-you-should-know/8334774002/

Time Can Breakthrough Infections Lead to Long COVID? | Time

Long Covid Support Group

https://www.facebook.com/groups/longcovid/about

Survivor Corps

HomePage

https://www.survivorcorps.com

Survivor Corps

PCCC's NJ (Post Covid Care Centers)

https://www.survivorcorps.com/pccc-nj

Survivor Corps

PCCC's USA

https://www.survivorcorps.com/pccc

The Lancet

Confronting COVID-19-associated cough and the post-COVID syndrome: role of viral neurotropism, neuroinflammation, and neuroimmune responses

https://www.thelancet.com/journals/lanres/article/PIIS2213-2600(21)00125-9/fulltext

The Scientist

NIH Grants $470 Million for Study of Long Covid

The study aims to recruit 40,000 adults and children to get a better sense of the condition that can last weeks or months after infection.

https://www.the-scientist.com/news-opinion/nih-grants-470-million-for-study-of-long-covid-69192

Survivor Corps

COVID 19 Long Hauler report 2020

https://static1.squarespace.com/static/5e8b5f63562c031c16e36a93/t/5f459ef7798e8b6037fa6c57/1598398215120/2020+Survivor+Corps+COVID-19+%27Long+Hauler%27+Symptoms+Survey+Report+%28revised+July+25.4%29.pdf

Consumer Reports

People With Lingering Coronavirus Symptoms Are Turning to Post-COVID Clinics

Dozens of centers have popped up to treat the growing number of Americans whose symptoms just won't go away

https://www.consumerreports.org/coronavirus/post-covid-19-clinics-and-lingering-coronavirus-syptoms-a5439992591/

CDC Post-Covid Symptoms

https://www.cdc.gov/coronavirus/2019-ncov/long-term-effects/

Robin Gelburd on findings of study on patients with long COVID | COVID-19 Update for Aug 10, 2021

A discussion with Robin Gelburd, JD, president of FAIR Health in New York, about the organization’s recent study on patients with long-haul COVID in what is currently the largest study to date looking at long-term symptoms post-COVID infection.

https://www.youtube.com/watch?v=5X40sIcOxSY

Brain Fog. Dense fog ahead. (Herstory 2)

(Herstory 1)

-------------------------------------------------------------------------------------------------------------The dotted line above at the end of my last post indicates a time warp.

Those words above the dotted line are from what seems to now be another lifetime of adventures I had. That lifetime feels so far away now... almost like like I drove away from that life long, long ago.  I crossed over a train track never to return to it.  It seems like the words and the images of that life all belong to someone else.  I wish I was kidding.  Covid is very trippy and I was never an LSD person.

In the new here and now of my world there is only covid or COVID and me. 

First came acute covid, then post-acute covid, then post-long-gone acute covid, then post-covid but the maybe lingering covid, then more lingering languishing covid then why the hell won't this go away COVID,  til now when I finally arrived at the lastest stop of the covid journey the dreaded "Long Covid"

This brings me to my first and on-going reaction: WHAT NEW FRESH HELL IS THIS?  

I would scream F--K!!! at the tops of my lungs if I could but nope my lungs aren't exactly going to be doing that anytime soon.  

So I will record stories blog make drawings do art do whatever I can.

I am stunned into a new state of being that I have surely not experienced before and hell no I would recommend this to my friends.

Brain Fog. It's like a long winding road in Maine when the mysterious fog rolls in from the seas: Dense fog ahead.

I have decided I will work with that (too).  The fog.  And all the rest. As an artist, I will 'co-act' with Covid.

Whatever else am I supposed to do?  

                                                                                                         (Go to Herstory 3)

What new fresh hell is this? (Herstory 1)

I was vaccinated twice. Moderna in January and February 2021. 

I survived the pandemic in a very large metropolitan area: NYC, Brooklyn to be exact. 

In July 2021 scheduled a well-deserved vacation and break from the pandemic stress, NYC stress, teaching art stress and all those Zoom meetings......  

I traveled to rural Maine to a village of a couple of thousand people give or take with antique shops, gemstone shops, coffee shops one good restaurant give or take and even an apothecary.  I wore my loosely fitting but comfortable cotton COVID mask everywhere I went together with my freely flowing cotton dresses and a bandana in my hair. I was free to be me and all the rest..

I was going to make new drawings and paintings for my portolio and I was going to visit my family, especially my beloved grand daughter who was 10 months old at the time.  

It was my first solo adventure, my first "just for me" time and I lavished in my situation for the first few days convinced I had found a slice of heaven of sorts. My senses came alive with the sights and sounds and smells and the tastes and .... what was that fifth sense again?  Sorry: my brain fog. 

There was a rushing river and there were meadows and fountains.  Fountains? No I don't think there were fountains. I am not sure. Sorry: my brain fog.

Brain fog. But I do remember hiking up wondrous small mountains to far off peaks, and finding mica in the soil and......

Actually I have the mica with me in a tiny pile on my desk back in Brooklyn so I know I definitely climbed there, right?

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                                                                                                             Go to Herstory 2