Wednesday, September 22, 2021

Long Covid Information / Resources etc.

I am posting some resources I have found here,  This is a 'random' list.  Whatever I have seen and clipped from the "newspaper"/ Internet these days makes it here. Also I keep adding things as I find them.

I do not mean for this to be an exhaustive list by any means.


Post Acute Covid-19 Program LINK

In the wake of COVID-19, the medical community has begun to acknowledge a subgroup of patients presenting with "long hauler" or persistent symptoms after an initial COVID-19 infection. The team at Mount Sinai Health System first identified this novel symptom presentation, and named it Post Acute COVID-19 Syndrome or "PACS". To address the needs of individuals experiencing PACS, the Department of Rehabilitation and Human Performance, along with Mount Sinai’s Center for Post-COVID Care, has developed a novel rehabilitation program. We are one of very few Centers in the country providing these services to patients of all ages. To learn more about this program, please email us at PRcovid@mountsinai.org.

Media Articles

For more information on post-COVID conditions, refer to the personal stories of COVID-19 survivors. 

Can You Get Long COVID if You’re Vaccinated?
USA Today The Backstory: Long COVID causes fatigue, pain. Here's what long-haulers want you to know:https://www.usatoday.com/story/opinion/2021/09/17/long-covid-symptoms-last-months-longer-what-you-should-know/8334774002/
Time Can Breakthrough Infections Lead to Long COVID? | Time
Long Covid Support Group

Survivor Corps

HomePage

https://www.survivorcorps.com


Survivor Corps

PCCC's NJ (Post Covid Care Centers)

https://www.survivorcorps.com/pccc-nj


Survivor Corps

PCCC's USA

https://www.survivorcorps.com/pccc


The Lancet

Confronting COVID-19-associated cough and the post-COVID syndrome: role of viral neurotropism, neuroinflammation, and neuroimmune responses


The Scientist

NIH Grants $470 Million for Study of Long Covid

The study aims to recruit 40,000 adults and children to get a better sense of the condition that can last weeks or months after infection.



Survivor Corps

COVID 19 Long Hauler report 2020

https://static1.squarespace.com/static/5e8b5f63562c031c16e36a93/t/5f459ef7798e8b6037fa6c57/1598398215120/2020+Survivor+Corps+COVID-19+%27Long+Hauler%27+Symptoms+Survey+Report+%28revised+July+25.4%29.pdf

Consumer Reports

People With Lingering Coronavirus Symptoms Are Turning to Post-COVID Clinics

Dozens of centers have popped up to treat the growing number of Americans whose symptoms just won't go away

https://www.consumerreports.org/coronavirus/post-covid-19-clinics-and-lingering-coronavirus-syptoms-a5439992591/

CDC Post-Covid Symptoms


Robin Gelburd on findings of study on patients with long COVID | COVID-19 Update for Aug 10, 2021

A discussion with Robin Gelburd, JD, president of FAIR Health in New York, about the organization’s recent study on patients with long-haul COVID in what is currently the largest study to date looking at long-term symptoms post-COVID infection.

https://www.youtube.com/watch?v=5X40sIcOxSY








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