Monday, November 22, 2021

Mount Sinai's Post Acute Covid-19 Program and Media on Long-Haulers Syndrome

Post Acute Covid-19 Program

https://www.mountsinai.org/locations/abilities-research-center/programs-technologies/post-acute-covid19-program

In the wake of COVID-19, the medical community has begun to acknowledge a subgroup of patients presenting with "long hauler" or persistent symptoms after an initial COVID-19 infection. The team at Mount Sinai Health System first identified this novel symptom presentation, and named it Post Acute COVID-19 Syndrome or "PACS". To address the needs of individuals experiencing PACS, the Department of Rehabilitation and Human Performance, along with Mount Sinai’s Center for Post-COVID Care, has developed a novel rehabilitation program. We are one of very few Centers in the country providing these services to patients of all ages. To learn more about this program, please email us at PRcovid@mountsinai.org.

Media Articles

For more information on post-COVID conditions, refer to the personal stories of COVID-19 survivors.

The Atlantic
Long-Haulers are Redefining COVID-19
Forbes
Many COVID-19 Survivors Suffer Months Of Post-Viral Symptoms: Tough New Realities — And A Personal Journey
The Wall Street Journal
Three Months In, These Patients Are Still Ravaged by Covid’s Fallout
The New York Times
Here’s What Recovery From COVID-19 Looks Like for Many Survivors (free subscription needed)

Saturday, November 20, 2021

Living with Long Covid from NPR

This is a broadcast from yesterday on NPR.

A helpful talk on Long Covid.

"Living with Long Covid from NPR"

https://www.npr.org/2021/11/19/1057241501/living-with-long-covid

Thursday, October 28, 2021

New Data on Breakthrough Cases from the CDC

There is new data from the CDC on Breakthrough cases:

COVID-19 Vaccine Breakthrough Case Investigation and Reporting

https://www.cdc.gov/vaccines/covid-19/health-departments/breakthrough-cases.html

and

The Possibility of COVID-19 after Vaccination: Breakthrough Infections

https://www.cdc.gov/coronavirus/2019-ncov/vaccines/effectiveness/why-measure-effectiveness/breakthrough-cases.html

Thursday, October 14, 2021

Continuing a Day in the Life of Long COVID (or 3) Herstory 4

This is a continuation of Herstory 3 from here:

Remember the change I found in the refrigerator? LINK

More Information on Long Covid

Long COVID: Live Updates on the Latest in Research and Policy

https://www.goodrx.com/blog/long-covid-updates/

Sunday, October 10, 2021

A Long Covid Patient Contributes Her Words Here

I am very happy to feature the words of Carole Terrizzi below.

While she and I are "co-workers" (we are both Professors in Residence) for a large, public university, we did not know each other very well until this experience.

Now for better or for worse, that has changed and we text each other very frequently. Every day. Long Covid is isolating.

"Covid has changed my life. It has taken away my essence and my peace. I was fully vaccinated in April 2021 but contracted the virus in late August. My symptoms were mostly that of a very bad sinus headache and nausea. I never thought I had Covid. From my symptoms I really thought I had a brain tumor. I took myself to the emergency room and they said I had Covid. I got monoclonal antibodies."

"The headache and nausea were incredible for about a week and then subsided. About a week later I got sick again. Nausea every day.. brain fog.. tingling in my legs. Aches and pains. So hard to sleep."

"Anyway now it’s October and I’m still sick I’ve been to the emergency room five times. Oh I forgot the high blood pressure. I have seen my GP at least 5 times, and a neurologist and soon a gastro doctor."

"I am convinced I have something deadly. I am ridden with anxiety. For now, that’s my story. I’m sad… depressed and I feel like I will never be well again."

Would you like to contribute your words, experience, art work, poems, vents, rants about Long Covid here? Please email your contribution to me at triadasamaras@gmail.com If you wish to remain anonymous I will not post your name. Triada